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What can you do to raise awareness about ALS and other Rare Diseases?
Every pALS journey is different and presents a different set of obstacles. Kristin and her husband, Todd, a pALS, set aside the last day in February to raise awareness for Rare diseases. They understand first hand just how difficult managing a rare illness can be. https://alsnewstoday.com/2020/02/27/rare-disease-day-diagnosis-progression-community-uniqueness/ In this article Kristin talks about what life was like when her husband was being diagnosed and how they continue to raise awareness for ALS and other rare diseases.
Can you relate to Kristin or Todd? Did you participate in Rare Disease Day? Do you feel that you can contribute to raising awaress or advocate for ALS and other rare disease because you or a loved one has ALS?
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