• This topic is empty.
Viewing 0 reply threads
  • Author
    Posts
    • #14701
      Amanda
      Keymaster

      Every pALS journey is different and presents a different set of obstacles. Kristin and her husband, Todd, a pALS, set aside the last day in February to raise awareness for Rare diseases. They understand first hand just how difficult managing a rare illness can be. https://alsnewstoday.com/2020/02/27/rare-disease-day-diagnosis-progression-community-uniqueness/ In this article Kristin talks about what life was like when her husband was being diagnosed and how they continue to raise awareness for ALS and other rare diseases.

      Can you relate to Kristin or Todd? Did you participate in Rare Disease Day? Do you feel that you can contribute to raising awaress or advocate for ALS and other rare disease because you or a loved one has ALS?

Viewing 0 reply threads
  • You must be logged in to reply to this topic.

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account