Forum Replies Created

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  • I agree with Gregory; that the quoted study on bacteria in our CNS is on too small a sample – – only 11 patients.

    The human nervous system remains a mystery to medical experts. Yes, Polynesians exposed to blue-green algae get ALS symptoms. So do Gulf War veterans exposed to chemicals. Some football players have ALS, so do some people following head trauma and general surgery.

    So, what about those like me who never played football, ate algae or was exposed to chemicals? I spent 30 years practicing yoga, meditation, tai chi and was a vegetarian – – and now have ALS.

    My attitude is “why put energy into wondering why, let the experts do that. My goal is to support my body through good wellness habits – – and live well while living with ALS.” 🙂

  • Dagmar

    Member
    April 3, 2019 at 3:28 pm in reply to: ALS, Youth, Treatments, fALS, pALS

    Good question Sergey! Let’s see if any of our forum members are ALS patients who are under 38…or a family member of someone who is.

  • Dagmar

    Member
    April 3, 2019 at 3:24 pm in reply to: ALS and teens and young adults.

    Sergey, I’m sorry to learn that you don’t have access to local patient organizations for support. Were you diagnosed in the Ukraine? How long did it take and what tests did they use to determine your diagnosis?

  • Dagmar

    Member
    April 3, 2019 at 12:54 pm in reply to: Disaster Preparedness

    Wow – – two evacuations!  Those are good tips; especially providing information to the fire department and power company.

  • Dagmar

    Member
    April 3, 2019 at 12:52 pm in reply to: Going to the Dentist

    I agree Kim, we need to take care of our teeth now while we’re still able to get into the dentist’s chair. It sure motivates me to be extra diligent with my daily brushing and flossing!

    I wonder if anyone has had a dental experience while in a wheelchair or maybe a home visit?

  • Dagmar

    Member
    April 3, 2019 at 5:09 pm in reply to: Questions about this Forum?

    Tim, hit the “reply” option… then when the comment box opens you see the top gray bar. Far right is a small picture icon. Use this to add an image.

    I found the option available both via my computer and my tablet. Hope this helps!

     

  • Dagmar

    Member
    April 3, 2019 at 5:06 pm in reply to: Questions about this Forum?

    Tim, I understand that you are having trouble seeing the forum topics while using your tablet. I looked at the forums on my android tablet screen and if you click “Forums” you can see each category. Then click say, “Living Well with ALS,” you’ll see all the topics you can then choose to add a comment to.

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