The Positives and Negatives of Feeding Tubes in ALS

The Positives and Negatives of Feeding Tubes in ALS

Although there’s no cure for amyotrophic lateral sclerosis, managing it wisely can increase survival and improve patients’ and their families’ quality of life. One tool for managing it is a feeding tube. An article in the journal Neurology covered the pluses and minuses of using the tubes in ALS. It…

Cross-ethnic Genome Studies Link GPX3-TNIP1 Genes to ALS Development

A new genome wide association study (GWAS) conducted in multi-ethnic patients with amyotrophic lateral sclerosis (ALS) has demonstrated that the GPX3-TNIP1 gene locus is significantly associated with ALS. The study, “Cross-ethnic meta-analysis identifies association of the GPX3-TNIP1 locus with amyotrophic lateral sclerosis,” was published in…

A Clinical Trial that’s Just My Style

During my last visit to the ALS clinic, my neurologist surprised me with an invitation to be a participant in a clinical trial that she was conducting. It was open to 50 of her patients, it could be completed in our own homes, and only it required…

Explaining the Progression of ALS

This illustrated video from Stichting ALS Nederland briefly explains the neurodegenerative disease, amyotrophic lateral sclerosis (ALS). MORE: Could exercise help ALS patients with swallowing? It explains the progression of the disease and how it affects patients. ALS causes the brain and spinal cord to stop transmitting signals to…

Understanding the Neurons Behind ALS

This video from Nature Video discusses the neurons behind amyotrophic lateral sclerosis (ALS).  The narrator explains that ALS is a neurodegenerative disease that usually begins in adulthood and progresses rapidly. MORE: 16 fast facts about ALS The disease is characterized by the loss of both upper and lower motor neurons,…

This Is What ALS Can Do in One Year

In this touching video from Friends of Alan Gustafson, we see how quickly the progressive condition amyotrophic lateral sclerosis (ALS) can change a person’s life. MORE: Four treatments that can help improve life with ALS In just a year, Alan has gone from an active father to being…