Runner Defies ALS to Compete in His First 5K Race

Kip Fontana was diagnosed with amyotrophic lateral sclerosis (ALS) in 2010 and was told by his doctors that he had between three and seven years to live — but Kip had different plans. Seven and a half years later, he has just competed in his first 5K race. MORE: Living with…

Inhibition of a key protein called dual leucine zipper kinase (DLK), a neuronal injury sensor, is protective in mice with amyotrophic lateral sclerosis (ALS) and Alzheimer’s disease and shows potential for future therapeutic strategies, according to researchers. The study, “Loss of dual leucine zipper kinase signaling…

This Macmillan Cancer Support video shares some tips on how to get the best out of your doctor’s appointments and hospital visits. MORE: 7 ALS Facts You Might Find Interesting Dr. Davina Deniszczyc explains that before you meet with your doctor it’s a good idea to prepare a…

It seems to me that learning to live with ALS now requires a crash course in Technology 101. Gone are the days of having to rely solely on other human beings for essential daily living needs. Today, both the ALS patient and their caregiver are receiving help…

Researchers have discovered a new way by which a gene mutation can kill neurons in people with ALS and a related disease, frontotemporal dementia, or FTD. Their discovery, published in the journal Neuron, could offer researchers a new approach to treating these incurable conditions. The gene mutation leads to…

Perceptive Devices, a company specializing in hands-free and voice-free electronic devices, is partnering with eye tracking device maker Tobii Dynavox to develop a new generation of hands-free and voice-free control technology for those with physical disabilities. Users of Tobii Dynavox products will now have the option of controlling their devices with Perceptive…

This segment from CBS Boston is sharing the good news that the FDA-approved drug Radicava for the treatment of amyotrophic lateral sclerosis (ALS) is now available for patients in the U.S. MORE: Nine things to know about Radicava The breakthrough drug has been found to slow down the…

The ALS Association is celebrating the third anniversary of the ALS Ice Bucket Challenge with a new awareness and fund-raising campaign to support the amyotrophic lateral sclerosis (ALS) community. The new campaign, “Every Drop Adds Up,” with the help of Kwittken, a global communications agency, aims…

Increasing the production of the muscle protein Dok-7 may be a way to treat the muscle weakness in ALS, a Japanese study reports. The research, “DOK7 genes therapy enhances motor activity and life span in ALS model mice,” was published in the journal EMBO Molecular Medicine. A hallmark…

An amyotrophic lateral sclerosis (ALS) diagnosis can be devastating for both the patient and their family. If a loved one has recently been diagnosed with ALS, they’ll need your support now more than ever. Remember to be understanding and patient. We’ve put together a list of things to consider if a someone close to you has…