This video from WCVB Channel 5 Boston is all about Rick Marks from Winchester, Massachusetts. Following an amyotrophic lateral sclerosis (ALS) diagnosis last October at the age of 55, Marks decided to raise awareness of the disease by hiking from Massachusetts to Maine. MORE: TV presenter talks about…
Man With ALS Plans to Hike 600 Miles to Raise Awareness of ALS
Researchers have discovered a natural mechanism that can help prevent the formation of harmful protein clumps that contribute to the development of amyotrophic lateral sclerosis (ALS), according to results of a new study. They also gained new insights into the formation of the protein clumps known as TDP-43 protein aggregates that…
RNA molecules that are not supposed to leave the cell nucleus might be responsible for driving neuronal cell death in people with amyotrophic lateral sclerosis (ALS), researchers from England’s University of Sheffield report in a study that suggests a way to prevent that from happening. The research team discovered just how…
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6 of the Best Apps for Chronic Illness Management
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage your chronic…
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A Song Inspired by ALS: ‘The Last Poem’
This video from Alisa Apreleva is all about an awareness campaign in Moscow, Russia, that’s helping to highlight amyotrophic lateral sclerosis (ALS). MORE: What research is being done on ALS? The video features Russian recording artists and patients in various stages of the disease singing a specially written and composed…
Massachusetts General Hospital in Boston and California Pacific Medical Center in San Francisco will be among the sites where ALS patients will take in a Phase 3 clinical trial of BrainStorm Cell Therapeutics’ NurOwn. The trial will begin after the company receives approval from the U.S. Food and Drug Administration and…
Last week, I had the opportunity to listen to an exciting and encouraging webinar on “Exercise and ALS: A Discussion of Research and Practical Recommendations.” Of course, I realize that exciting and encouraging don’t always show up in the same sentence with exercise and…
A musical instrument that can be played only with brain activity may empower and rehabilitate patients with ALS and other motor diseases. Invoking brain scans known as electroencephalograms, University of Washington researchers have dubbed the musical device they created an Encephalophone. The article they wrote about it, titled “A Novel Musical…
Neuraltus Pharmaceuticals has completed enrollment its Phase 2 confirmatory study of NP001 (NCT02794857) in ALS patients with systemic inflammation. The company expects the last patient in the trial to be assessed in early 2018 and to release the study’s results in the first months of the year. “Reaching…
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ALS Stories: How Gus Is Getting the Most Out of Life
https://www.youtube.com/watch?v=7FfWa7fcUw4 This video from Patients Like Me is all about baseball-loving Gus, who has amyotrophic lateral sclerosis (ALS). Gus explains that he is much more than his condition and hopes that others realize they are more than their illnesses, too. MORE: Explaining the early symptoms of…
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