Living with ALS means learning to live with a whole new normal. For example, before ALS, my old normal included diligently following recommended guidelines for annual health screening, such as monitoring bone density. This test (thanks to modern technology) is a simple x-ray of the lower spine and hips in…
Surviving the Dentist with the New Normal of ALS
Researchers have identified the sequence of molecular events leading to motor neuron death in amyotrophic lateral sclerosis (ALS), an important step forward that may lead to new therapies to halt this process. They found that unlike healthy astrocytes, which are…
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An Overview of the Signs and Symptoms of ALS
In this video from the ALS Association, discover some of the signs and symptoms of amyotrophic lateral sclerosis (ALS). The film explains that the symptoms often appear very slowly at first and can vary greatly from person to person. MORE: Do firefighters have an increased risk…
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Radicava’s Journey to Becoming 1st ALS Treatment in 22 Years, an Interview with MT Pharma America
Radicava, also known by its generic name edaravone, is the first treatment approved by U.S. Food and Drug Administration (FDA) in more than two decades to help amyotrophic lateral sclerosis (ALS) patients. While awaiting its arrival, ALS News Today spoke to the company responsible for its U.S. launch,…
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What Research Is Being Done on ALS?
The National Institute of Neurological Disorders and Stroke (NINDS) is one of the world’s leading funders of research into amyotrophic lateral sclerosis (ALS). Its goals are to better understand the cellular mechanisms which lead to the development and subsequent progression of ALS, discover more about the…
Share Your Blessings is a non-profit organization that specializes in helping children and adults with special needs. As part of its Project Maestro initiative, it has given away more than 750 Beamz Interactive Music Systems with a retail value of $300,000 to people with disabilities, according to…
Mindfulness-based programs may help improve anxiety and depression in patients with amyotrophic lateral sclerosis (ALS), according to results of a study published recently in the European Journal of Neurology. The study is titled “Meditation training for people with amyotrophic lateral sclerosis: a randomized clinical trial.” The journal also published…
An artificial-intelligence-proposed ALS therapy prevented the death of movement-control neurons in a lab and delayed the onset of the disease in an animal model, according to British scientists. The University of Sheffield team said the AI company BenevolentAI suggested the therapy, which has yet to have a name. The drug candidate promotes…
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15 Signs That Confirm You’re Definitely a Spoonie
A “spoonie” is a term used by people with chronic illnesses. It stems from lupus blogger Christine Miserandino who explained her lack of energy using spoons. How do you know if you’re a spoonie? We’ve scoured the Internet for some examples of what it’s like to be…
An imbalance between production and degradation of protein in the central nervous system may contribute to amyotrophic lateral sclerosis (ALS), researchers at England’s University of Sheffield suggest. Their study, “Protein Homeostasis in Amyotrophic Lateral Sclerosis: Therapeutic Opportunities?,” appeared in the journal Frontiers in Molecular Neuroscience. It reviewed available data showing that disturbances in…
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