“The ALS Association’s Chief Scientist, Lucie Bruijn, PhD, MBA, hosted an “Ask the Expert” panel discussion on December 9th, 2015 at the MND/ALS International Alliance Meeting in Orlando, Florida.” Learn more about ALS here: https://bit.ly/ALSNewsToday…
In this news report aired on KSPR on May 28, 2008, meet 16-year-old Haley Stevens who lost control of her limbs during one school year, and her doctors say she’s the youngest person they’ve ever seen with ALS. Also, watch a interview with Haley’s mother. Learn more…
The ALS Association, together with partner Prize4Life, has announced the First Phase winners of The ALS Assistive Technology Challenge, which now enters its Prize Phase, where $400,000 will be awarded for the development of flexible, accessible technology to help people with amyotrophic lateral sclerosis (ALS) communicate better.
Because most symptoms of ALS are related to muscle activity, many people don’t realize the underlying cause: damage to the nerve cells. As ALS progresses, a few patients develop some level of cognitive impairment.
Matt Belina, US Navy pilot was diagnosed with amyotrophic lateral sclerosis (ALS) in 2012. He and his wife are now actively trying to fight the barriers the FDA’s lack of approvals raise and prevent him from having access to experimental drugs he believes might save his life. Learn more…
German researchers have identified a new gene — called NEK1 — that appears to be responsible for familial amyotrophic lateral sclerosis (ALS). Loss of function mutations in the gene were more common in ALS patients than in healthy controls, according to findings published in the journal Brain. Familial ALS…
Jen and Pat Quinn, alumni from Iona College, were distinguished during the halftime at the Iona College Men’s basketball game versus Quinnipiac for their fight against amyotrophic lateral sclerosis (ALS).  Video by SALRADIO. Learn more about ALS here: https://bit.ly/1RmVMwo…
In this video by ALS Society of Canada, meet Dr. Michael Strong, a pioneer in ALS research with more than 20 years’ experience. Watch him comment on where your donated dollars go in research and the achievements of his lab at Western University. Learn more about ALS…
OptiKey is a free, assistive on-screen keyboard software for computers on the Windows operating system. It is designed to be used with a low cost eye-tracking device to enable speech and keyboard and mouse control to people with motor and speech limitations, such as amyotrophic lateral sclerosis (ALS) or…
Last week’s hot topic on ALS was an article titled Biohaven’s ALS Drug Candidate BHV-0223 Receives Positive FDA Feedback written by Magdalena Kegel. The article is focused on the recently announcement that Portage Biotech and Biohaven Pharmaceuticals  have received positive feedback from the U.S.
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