Jim Barber: 2016 Hero Living with ALS

Jim Barber: 2016 Hero Living with ALS

“Meet Jim Barber, one of the four people with amyotrophic lateral sclerosis (ALS) honored by the ALS Association, in February 2016, for their extraordinary efforts in making a difference for the ALS community.” Read more on ALS here: https://bit.ly/1RmVMwo…

Mind Matters in Motor Neurone Disease

In this video from The University of Edinburgh, watch “Professor Sharon Abrahams, Personal Chair in Neuropsychology, deliver her inaugural lecture entitled Mind Matters in Motor Neurone Disease. In this lecture, Prof. Abrahams discusses her work with people living with a degenerative disease and in particular motor neurone disease. This…

ALS 101 – What is ALS?

In this Project ALS video, learn more about ALS, also known as Lou Gehrig’s disease. ALS is a brain disease which is closely related to Parkinson’s, Alzheimer’s, and Huntington’s diseases. ALS targets cells in the brain and spinal cord called motor neurons. In ALS, as motor neurons die, a…

ALS Drug Developer Cytokinetics Joins Rare Disease Day Efforts to Educate and Promote Change

Cytokinetics announced that it has joined with efforts by the European Organisation for Rare Diseases (EURORDIS) and the National Organization for Rare Disorders (NORD) to raise awareness for Rare Disease Day. Cytokinetics is focused on discovering, developing, and commercializing new types of muscle activators, and has developed the amyotrophic lateral sclerosis (ALS) drug candidate…

Nanci Ryder: 2016 Hero Living with ALS

Meet Nanci Ryder, one of the four people with amyotrophic lateral Sclerosis (ALS) honored by the ALS Association, in February 2016, for their extraordinary efforts in making a difference for the ALS community. Read more on ALS here: https://bit.ly/1RmVMwo…

Last Week’s Hot Topic on ALS

Last week’s hot topic on ALS was an article titled Simplesa Expands ‘Deanna Protocol’ Diet Supplement Choices for ALS Patients written by Carolina Henriques. The article is focused on the expansion of the Deanna Protocol Bundle Pack choices for consumers by Simplesa, a nutrition…

ALS Research to Benefit from National Science Foundation Awards for Robotics, Online Communication

Northwestern University researchers Anne Marie Piper and Brenna Argall have received the prestigious Faculty Early Career Development (CAREER) Award from the National Science Foundation for exceptional work, some of which has implications in amyotrophic lateral sclerosis (ALS) research. The CAREER Award supports promising young faculty members who lead by example…

ALS Patients Push for ‘Right to Try’

In this 13WHAM ABC video, meet Cindy Ling. She watched her father die from ALS and now she is living with the disease, she was diagnosed in October of 2013. According to the ALS Association, 5,600 people in the United States are diagnosed with the disease each year. But some patients like Cindy…

What is ALS?

In this video by NathanAndRose, watch Rose describe the amyotrophic lateral sclerosis disorder (ALS) and the American organization (ALS Association) which is searching for the cure. Learn more about ALS here: https://bit.ly/ALSNewsToday…