This Houston Methodist video is all about Kevin Kinchen. Kevin was diagnosed with amyotrophic lateral sclerosis (ALS) seven years ago, but he hasn’t let that stop him from getting on with his life. MORE: Learn more about the beloved Hollywood publicist who was diagnosed with amyotrophic lateral sclerosis in…
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Masitinib may potentially help amyotrophic lateral sclerosis (ALS) patients by targeting mast cells, a Uruguayan study shows. The study, “Evidence for mast cells contributing to neuromuscular pathology in an inherited model of ALS,” appeared in JCI insight. ALS, a neurodegenerative disorder, is characterized by…
“Have you seen this?” The opening line of my friend’s email certainly caught my attention. Turns out my friend sent along a link to a website, one of the new online ALS resources that have been popping up lately. Eagerly I checked it out, and being pleased with…
Military veterans in the United States who were deployed to World War II or who handled burning agents during their service show shorter amyotrophic lateral sclerosis (ALS) survival, a new study finds. The research, “Military service, deployments, and exposures in relation to amyotrophic lateral sclerosis survival,” appeared in…
More therapies are now available for the 30 million or so people with rare diseases in the U.S. than ever before, and millions of dollars are being invested in clinical studies that will test new ways of evaluating — and advancing — potential treatments, including the use of natural history…
Voyager Therapeutics has recently presented data of its leading adeno-associated virus (AAV) gene therapy for several neurological diseases, including amyotrophic lateral sclerosis (ALS), at the Congress of the European Society of Gene and Cell Therapy (ESGCT), Oct. 17-20 in Berlin, Germany. In their poster, “Translation of Intrathecal Delivery of an AAV Gene…
5 Important Things the ALS Association Does
The ALS Association was founded in 1985 and is dedicated to helping patients who suffer from amyotrophic lateral sclerosis (ALS). The non-profit organization operates with a global scope, coordinating their research with some of the world’s top scientists. Here are five more things this incredible organization does: Research…
The presence of diabetes is associated with a 70 percent reduction in the risk of amyotrophic lateral sclerosis (ALS), new study shows. The study, titled “The role of pre-morbid diabetes on developing Amyotrophic Lateral Sclerosis,” was published in the European Journal of Neurology. ALS patients tend…
Neurologist Talks About Diagnosing ALS
In this video from the Brattleboro Reformer, learn more about how ALS patients like Andy are diagnosed from a doctor’s point of view. MORE: Andy shares his ALS journey in this touching video Neurologist Dr. Elijah Stommel explains that he sees two newly diagnosed ALS patients each week and that each…
Tips for Nursing a Patient With ALS
In this EmpowerRN video, Caroline, a registered nurse, talks through the signs, symptoms and treatments for amyotrophic lateral sclerosis (ALS) and how the disease progresses. MORE: Seven facts about amyotrophic lateral sclerosis you might find interesting The video is primarily aimed at fellow nurses, offering tips on studying…