A new blood test that analyzes tiny fragments of DNA released by dying cells may help diagnose amyotrophic lateral sclerosis (ALS) and predict how quickly the disease will progress, a study suggested. “Our model test could not only distinguish ALS patients from healthy individuals but also from those with other…
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My Journey to Accept Living With ALS
It took time for Philip to discover acceptance was key to him for living with ALS. Learn about his journey from diagnosis to getting the help he needed to move ahead. This content is sponsored by Tanabe Pharma America, Inc. (TPA) and is intended for US audiences only. Any other…
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Providing Love and Support for My Daughter With ALS
Like any mom, Luz was shocked when her 19-year-old daughter, Emma, was diagnosed with ALS. Discover how they learned to face the future and move forward together. This content is sponsored by Tanabe Pharma America, Inc. (TPA) and is intend for US audiences only. Any other present or future content…
Amanda Sifford shares her experience working as a school psychologist while living with amyotrophic lateral sclerosis (ALS). She reflects on workplace support, self-advocacy, and the importance of finding joy and balance through the challenges of fatigue and disease progression.
Mindy Uhrlaub, an author and activist for amyotrophic lateral sclerosis (ALS), has spent a good part of her life caring for loved ones. Soon after she became a mom in 2003, her husband learned he had cancer. “Right as my older son was taking his first wobbly steps, my…
Clinicians view early access to palliative care as beneficial for people with amyotrophic lateral sclerosis (ALS), yet its integration into routine care remains inconsistent, a U.S. study found. About two-thirds of ALS clinicians said they had a palliative care specialist on their team, and just over half of ALS…
Al Freedman, PhD, a psychologist who specializes in rare disease communities, discusses how to manage social isolation while living with amyotrophic lateral sclerosis (ALS). He shares his background as a father to his late son Jack, who had spinal muscular atrophy (SMA), and how his role as a caregiver has…
The U.S. Food and Drug Administration (FDA) has granted fast track status to usnoflast, Zydus Lifesciences’ experimental oral inhibitor, for treating amyotrophic lateral sclerosis (ALS). The designation is meant to accelerate the development and review of new therapies that address unmet medical needs in serious or life-threatening conditions, and…
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Embracing the Present During My Journey With ALS
His ALS diagnosis made Air Force Veteran Michael focus on what matters most to him—strengthening his relationships with his children. Hear more about how he generates hope for others with ALS so they can stay in the fight. This content is sponsored by Tanabe Pharma America, Inc. (TPA) and is…
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One Person’s Mission to Spread Hope, Joy, and ALS Awareness
As a former pastor and chaplain, Deb found the strength to transform the fear and frustration from her diagnosis into hope and help for others with ALS. Discover how Deb learned to celebrate every new day as a gift.