ALS Association’s Advice to NINDS: Move Quickly on Research
In response to the National Institute of Neurological Disorders and Stroke‘s (NINDS) request for community input regarding what it…
Articles by Mary Chapman
ALS Canada Research Program, Brain Canada Award Grants to 9 Projects
The ALS Canada Research Program and the Brain Canada Foundation partnered to award CA$1.125 million (about $885,600) in grants…
Canadian Registry, Amylyx Working to Collect Real-life Data on AMX0035
The Canadian Neuromuscular Disease Registry (CNDR) and Amylyx Pharmaceuticals are collaborating on an initiative that could produce the first…
Doddie Foundation Gives £100K to Support MND Association Programs
To help support people living with motor neurone disease (MND), a group of disorders that includes amyotrophic lateral sclerosis,…
Cytokinetics’ Grants Support Patient Advocacy Groups
Cytokinetics has awarded a total of $100,000 to five nonprofit patient advocacy organizations to support efforts to enhance communications,…
‘Not Going Quietly’ Tells of Patient’s Efforts to Broaden US Healthcare
Ady Barkan was a new father and activist when, at age 32, he learned that he had amyotrophic lateral…
ALS Community Invited to Help Set Research Priorities in US
The National Institute of Neurological Disorders and Stroke (NINDS) is asking people across the amyotrophic lateral sclerosis (ALS) community…
Lief Care and AxeALS Partner to Support Patients’ Nutritional Needs
A Lief Cares initiative, under its partnership with AxeALS, raised nearly $8,000 for the amyotrophic lateral sclerosis (ALS) community and…
ALS Patient Posts 1st Tweet Using Stentrode Brain Computer Interface
A recent tweet by an Australian amyotrophic lateral sclerosis (ALS) patient using an implantable brain computer interface called…
PRO-ACT Database Wins Healey Center Prize for Innovation in ALS
The largest collection of amyotrophic lateral sclerosis (ALS) clinical trial data, amassed to help researchers globally find better treatments…