Welcome to “The Mighty Mind.” When I was diagnosed with ALS at age 28 in 2015, I felt like I had lost everything. My body, without warning or reason, had turned on me, and that meant the end of so much. My teaching career, and dreams of motherhood and growing…
ALS is not only a confusing disease for those of us who have it, but it also throws our well-meaning friends into a tizzy. Friends who truly want to show their love and support are stymied as to what to do, how to act or what to bring.
A quote on a friend’s Facebook page caught my attention recently. Reading it was a reminder of how far I’ve come in learning to live with ALS. “It is not primarily our physical selves that limit us, but rather our mindset about…
Speak clearly Use a fork and knife when you eat Hand-write your thank you notes The above (plus a few more) were on my mother’s list of good manners that she expected me to follow when I was a kid. They certainly helped me through the years and proved…
It seems to me that learning to live with ALS now requires a crash course in Technology 101. Gone are the days of having to rely solely on other human beings for essential daily living needs. Today, both the ALS patient and their caregiver are receiving help…
I think we all can agree that ALS is one confusing disease. Confusing not only to medical experts worldwide, who can’t point to a cause or find a cure, but also it continues to be a mystery to most of the public at large. Heck, I didn’t even…
Having spent most of my life pursuing gymnastics and dance, being able to move with balance and symmetry was for me a priority. That meant keeping my body’s left and right sides strong and flexible, along with making balancing on one leg look just as easy as…
My recent columns about rollators, scooters and electric grocery carts brought many positive comments from readers who shared their own similar experiences. From these comments, I noted how when living with a condition such as ALS, so many of us have a warrior mindset; each day is a…
Did you know that walkers weren’t invented until the 1950s? I shudder to think how mobility-challenged people managed to get around, or didn’t, before that time. And it wasn’t until 1978, when a woman in Sweden (who had polio) added four wheels onto her walker, creating what…
Last week, I had the opportunity to listen to an exciting and encouraging webinar on “Exercise and ALS: A Discussion of Research and Practical Recommendations.” Of course, I realize that exciting and encouraging don’t always show up in the same sentence with exercise and…
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