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Do you find it challenging to keep in contact with family and friends?
Managing a condition like ALS can be overwhelming, never mind having to keep friends and family updated on your circumstances. Even in-person conversations can be exhausting. But there are many new ways to stay connected without feeling drained.
For example, the online site CaringBridge https://www.caringbridge.org/about-us lets your designated contact person share updates with a large group – – only instead of having to send out multiple emails, only one update is needed and your group then checks in to read it.
Have you tried CaringBridge or a similar method? Please share your experience and tips for easy ways to stay in contact with family and friends.
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4 Replies
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Yes I’m lucky to have this problem. Thank you for sharing the Caring Bridge option.
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thank you Dagmar for sharing the Caring Bridge option, I just created my web page. It is indeed tiring to repeat yourself over and over in emails to friends and family.
https://www.caringbridge.org/visit/reese1
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Reese, I’m so happy that the CaringBridge site is helpful for you. Our friends and family want to be informed, but they wouldn’t want that at the expense of our physical & mental energy. This is a win-win all around.
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Thank you Dagmar, I’ll check into Caring Bridge
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I had to delete my site because you can’t modify a journal entry once it’s posted. I had no choice. I later regretted providing too many “gory” details to the world because I chose the googlable option. I’ll try again but be more mindful next time.
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