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Hello Misty,
The same issue came up in an ALS educational event that I recently attended. The advice was to notify your local ALS Association Care Coordinator who can communicate with your Hospice provider on your behalf. The Hospice provider should not be denying you services – – they are misinterpreting the rules.
Here is a link to the ALS Assoc. Arizona Chapter: http://webaz.alsa.org/site/PageServer?pagename=AZ_8_patient_family_services
And the contact there:
Amy Frank | Director of Care Services
The ALS Association Arizona Chapter
360 E Coronado RD, Suite 140 | Phoenix, AZ 85004 | http://www.alsaz.org
(p) 602-297-3800 | (c) 480-229-2019 | [email protected]