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A Guide to the Language of ALS
As a newly diagnosed ALS patient, I was unfamiliar with the medical jargon being used in the ALS community. Some words sounded odd to my nonmedical ears, while other words had double meanings. And then were the acronyms or abbreviations — like ALSFRS, FVC, SLP, BiPAP, and AFO. I remember it was frustrating having to look up meanings or asking others to explain and talk in “real words.”
But the acronyms and jargon are here to stay. So, let’s help our newly diagnosed members by creating a guide that we can all refer to when we run across medical slang that stumps us.
Add your words, phrases, or acronyms in the comment section below. Or if you have a “What’s this?” or an acronym that you need help with, just post it in the comment box as a question so our forum members can tell us what it means.
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