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    • #13610
      Amanda
      Keymaster

      There have been numerous articles over the past several months which are focusing on specific gene mutations and what they lack that may likely  cause ALS (varies from mutated gene). There are also numerous studies being conducted that are focusing on repairing what a specific mutation causes. I’m curious that when you are talking to the neurologist about possible treatments, are they discussing clinical trials  or treatments based on genetic mutations?

    • #15025
      Mario
      Participant

      Hello,
      My mother has been diagnosed with ALS about three months ago and she is on Riluzole treatment at the moment.
      Some doctors told us about Chelation therapy.
      This therapy is used to reduce heavy metal intoxication that might be in the blood as they accelerates the cellular aging process;
      The treatment is done with an intravenous chemical infusion that expels heavy metals,considering that ALS patients usually have a surplus of those metals such as: lead,mercury and others.
      This treatment is usually used to cure other diseases but does anyone know if there are any experiments of chelation therapy on ALS patients?
      Thank you all.

    • #15027
      Dagmar Munn
      Keymaster

      Hello Mario, I am sorry that your mother has ALS. But you are in the right place for quality information and support from our members. And thank you for your question.

      Regarding chelation therapy, it has not been recommended for treatment of ALS. I have provided a link below for you to an article written by Dr. Bedlack, neurologist specializing in ALS. This article addresses a number of complementary/alternative therapies, you’ll find chelation therapy on page 14.

      Bottom line: heavy metals have not been found to cause ALS. Treatments to “remove” heavy metals do not cure ALS.

      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712627/

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