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Best Advice for New Members
As we approach our 1 year anniversary for the ALS forums, I am amazed at how our membership has grown. We have gained a lot of new members, especially over the past couple of months. Many of our members are newly diagnosed, some just within days or weeks of joining our forum. Others have been a pALS for 5 years and up! We have members that have sporadic ALS and famlilal ALS. Some members have multiple family members with ALS, such as mine. Others are the first and hopefully the only person in their family to have an ALS diagnoses. Although it saddens me to know that the ALS forum is needed because that means we have not found a cure yet, I am honored to virtually meet and get to know each of our members. I learn from you every day! It is also clear that when pALS and caretakers share their experiences, we all learn from one another.
So, for our pALS who are not newly diagnosed, what advice would you give pALS that are newly diagnosed? What should they focus on, and what should they avoid?
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