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Caregivers need to take care of themselves
Learning about a spouse, sibling or parent diagnoses of ALS can be devastating. Often times we focus on what we believe to be the inevitable, a quick decline. Many people are now living longer with ALS. We hear about new research and clinical trials more frequently now than we did just 5 years ago. ALS is now in the media and getting more attention and that helps propel research. Regardless of the advances in research and hope that it brings, caregivers and pALS are still faced with challenges every day. Caregivers spend a great deal of time focused on their loved ones, making sure doctor appointments are made, medication is taken, and making sure that the pALS needs are met. It is important for the caregiver to make sure they are also taking care of their own needs. This may include eating healthy, exercising, taking breaks, getting out once in a while or just taking a nap. Often times, it takes a great deal of planning for the caregiver to have a break. Caregivers may also want to consider counseling if they feel it could be beneficial. Sometimes, it is easier to talk to someone who is unbiased and not impacted by ALS. Counselors can often see outside the situation and help you come up with some practical and workable ideas.
Do any of the caregiver members go to counseling or support groups? If so, how did you get connected? How do you make sure you are staying healthy and rested so that you are in good shape to help you loved one?
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