Viewing 2 reply threads
  • Author
    • #15284

        Do you feel obligated to tell people outside of your loved ones that  you have ALS? How did you tell your loved ones? Has telling people brought you support from unexpected places?

      • #15322
        Chuck Kroeger

          We have no problem telling people that I have ALS.  I’m in a wheelchair with trilogy nose piece and curled fingers so you can see the curiosity in many people’s faces.  I feel like the more we tell, the better the awareness.  Most family members were told in person that I have it but we also used social media.

        • #15328

            I neither feel obligated nor reluctant to tell people I have ALS. I told my family directly as well as close people at work or friends. At over two years after diagnosis, I’m a little different than many in that most people won’t notice anything wrong. I do at times wear a wrist brace and a couple of things to control finger curl. They don’t usually notice the muscle atrophy in my arm. When people ask about the wrist, I do tell them about my ALS. Sometimes I simply say I have a neuromuscular disease if there is no time.

        Viewing 2 reply threads
        • You must be logged in to reply to this topic.

        ©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

        CONTACT US

        We're not around right now. But you can send us an email and we'll get back to you, asap.


        Log in with your credentials


        Forgot your details?

        Create Account