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Do you search out clinical trials?
The federal government has a website for clinical trials, ClinicalTrials.gov, a central database for clinical trials.
There is also the ALS Navigator:
https://www.als.net/als-trial-navigator/.
And this site includes privately funded as well as government-funded trials – The Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS)
Would you or do you participate in clinical trials? Why or why not (if you are comfortable sharing)?
Do you ask your doctor for opportunities, or do you expect them to bring it up?
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1 Reply
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I look for clinical trials and I also check in with my doctor. Unfortunately, I am past two years since onset so I don’t qualify for most trials. I do try to keep up on EAP though. Meanwhile, I have been taking a “PrimeC like” prescription on top of riluzole all and radacava. If an EAP should become available for me to participate in, I can wash out the “PrimeC like” prescription in a month
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