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    • #13249
      Amanda
      Keymaster

      It isn’t uncommon to come across a “magic cure” or diet that will stop ALS. I think we’ve all read at least one article or ad with unsubstantiated claims while we have researched ALS. One of the recent articles on ALS News Today brings to light such claims in the article https://alsnewstoday.com/2019/09/18/ftc-warns-three-companies-unsubstantiated-cbd-products-advertising-als/.

      What diets or treatments have you researched? In what country/state was the treatment available? Do you have information or advices to share that could help a pALS or caregiver avoid getting taken advantage of?

    • #13256
      Dagmar Munn
      Keymaster

      It’s sad that scammers continue to prey on ALS patients. Whenever my Live Well with ALS column gets published, there’s always a comment or two from the “magic herbal doctor.” – – of course, they get deleted!

      Folks need to remember that they will not learn about a cure for ALS on facebook, Twitter or in an email. It will be announced by the major, legitimate news sources.  No one cured their ALS by removing all the fillings from their teeth or rubbing coconut oil on their feet!

      Here’s a fun blog column I wrote on this very topic: Auntie A. Ellis Wades Through the Cures

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