Do you keep up with ALS research and clinical trials? I’ve been following the information that has come from the pre-fALS study that I participate in and they have published information about biomarkers found in blood samples for pALS and pre-fALS with the SOD1 mutated gene. I find this particularly interesting because the goal is to be able to stop the progression and possibly the onset of genetically linked ALS through gene therapy. They have made great advancements; however, we still have a ways to go!
We’ve also had a lot of conversations about NUROWN in our community. ALS News Today just published this article outlining the next step in research https://alsnewstoday.com/news-posts/2020/10/12/brainstorm-details-phase-3-nurown-trial-design-for-treating-rapidly-progressing-als/
What treatment/research do you think is the most significant? Please feel free to share a link to articles if you have any.