Thanks Amanda — these are helpful sites that guide us through the confusing terms and concepts.
Back in 2010, I wasn’t offered genetic testing. My doctor only recommended it if I knew of any relatives who had ALS symptoms. Which I didn’t. But, many of my family relatives came over from Europe and I can’t track back more than one or two generations. Health history is pretty sketchy.
I think genetic testing should be included in anyone’s initial evaluation for ALS.