Have you lost weight since your diagnosis?
Just ten or twenty years ago, it was common for ALS patients to experience rapid weight loss and muscle atrophy soon after diagnosis. I remember when ALS Clinics urged patients to gain extra weight by eating “whatever you want.” Now, it seems that more and more ALS patients are maintaining a healthy weight through good nutrition and exercise.
My experience was that of being “athletic slim” prior to diagnosis; I watched my calories and exercised diligently. Following diagnosis, I relaxed my dietary constraints – – ate healthy food and satisfied my growing appetite – – I gained only ten pounds and have leveled out at that weight for the past ten years. My doctor isn’t concerned.
Have you lost (or gained weight) since your diagnosis? What advice have you received from your medical team?
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