How do you connect with others in the ALS community?
In Kristin Neva’s recent column, she describes how as a caregiver for her husband who has ALS, she tried several options to connect with others in her same situation. She participates in many online groups but didn’t find anyone her age or who was also raising small children. So, she started a new one for spousal caregivers with young children.
What are your experiences with ALS support groups? Do you participate in any online social media groups? What would be the perfect group for you, if you could find it – – or create it?
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