ALS News Today Forums Forums Living With ALS How is Diane Huberty, our dearest RN?

  • How is Diane Huberty, our dearest RN?

    Posted by Deleted User on January 9, 2024 at 1:28 pm

    Diane Huberty ought to have exceeded 600 moons with Amyotrophic Lateral Sclerosis . . . yet no word from her in many moons; I hope she continues to be ok . . . Canadian Steve Wells was regarded as the longest living Amyotrophic Lateral Sclerosis patient since Stephen Hawking passed but Wells does not appear active on the web.

    Deleted User replied 1 month ago 2 Members · 2 Replies
  • 2 Replies
  • Dagmar

    January 11, 2024 at 11:30 am

    Oh my, I haven’t heard the name Diane Huberty for many years… so it is interesting to find out how she is fairing in 2024. Her website “ALS patient care from both sides”

    was the inspiration for my own ALS and Wellness Blog. I related to her experience of having worked in a hospital setting – – and now being an ALS patient. Does anyone have an update on her status? I wish her well and hope she is chugging along.

  • Deleted User

    Deleted User
    January 16, 2024 at 3:17 pm

    This is one of the most vexing issues regarding keeping patients on our minds . . . often no news is heard for very long period of time . . . sometimes this is explained by an obit but there are many patients who are very active but suddenly ‘disappear without a trace.’ As an example TipaCow had a contact person but the contact person ‘disappeared’ before TipaCow did . . . so what can one do now?

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