Let’s talk about ALS, emotions and Grief
ALS, those terrible three little letters! What did you feel when you first heard them in reference to your diagnoses?
Many times when a person gets a diagnosis of something there is a sense of relief just because now they can understand and “fix” what ails them. This is not the case when you are diagnosed with ALS a disease with no cure. It is impossible to always feel positive when you have a disease like ALS. That is unrealistic in my opinion. I think it is only natural to grieve when you have ALS. Grief is not just an emotion we experience when someone we know or loves die. You can grieve the loss of your health, the loss of your dreams, your future, what you thought would be. You can even grieve the loss of someone you didn’t know (I had to explain that one to a parent one day at work. Their child was crying because they never knew their grandfather and it was grandparents day at school.) Grief is strong, scary, wrenching, and countless other adjectives.
So let’s be realistic about being a pALS. We definitely focus on Living Well with ALS and trying to maintain a positive attitude as much as possible.
Grieving is not a linear path. You can move in and out of different stages daily, or even from hour to hour. Where are you at right now? Do you have tips on managing grief? What do you think?
From the I AM ALS website.
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