pALS Roundtable: What to say to friends and family about your ALS
Announce to the world that you have ALS, and most folks are completely baffled about what is expected of them. At the time I told my friends I didn’t even have a clue how to answer their questions of, “What can I do to help you?”
So, during those first few months I remember I received cards, flowers and, yes, even offers of soup! I’ve since learned what to tell folks – – for example:
- Try to keep our relationship as normal as possible. Pull me out of dwelling on my illness by sharing funny stories or discussing our common interests and current events.
- I may walk a little slower now, have speech issues, and not eat the same foods as before, but don’t let that prevent me from attending special events and enjoying the company of others.
- And, finally, keep my caregiver (spouse) in mind. If my care is intensifying, offer to run errands, mail a package or pick up a take-out meal. Or maybe give the gift of time by offering to visit with me so he or she can get out and have some “me time” as well.
Did your friends have misconceptions about how to help someone with ALS? How did you approach the topic and what did you ask of them? What do you wish they would do?
Log in to reply.