• Awareness and Advocacy

  Rare Disease Day

  Posted by Amanda on February 27, 2020 at 8:18 pm

  Why are we (ALS News Today and BioNews) promoting Rare Disease Day 2020 so much you may ask. It is because we know that the more The ALS Community speaks out and draws attention to ALS, the more funding will go to ALS research. Additionally, The more we speak out the more Our Community can impact the direction of research and bring treatments to pALS.  We would love to hear how you have gotten involved!  It’s important to support our ALS Community. If you want to learn more about Rare Disease Day or  the many activities planned for February 29th, check out this link https://rarediseaseday.org/

  Amanda replied 4 years, 1 month ago 1 Member · 0 Replies

  • ALS
  • ALS advocacy
  • ALS research
  • RARE Disease Day
  • WE ARE RARE
• 0 Replies

Log In to Reply