• Posted by Amanda on April 8, 2020 at 10:48 pm

    For the research study, pre-fALS, I have in person visits twice a year and remote visits quarterly. During the quarterly visits they draw blood and do a urinalyses and they host a phone call where they track symptoms and environmental factors. For pALS or potential pALS, have you been able to do any of your appointments or part of the data gather portion remotely? How does that look? Can you zoom or hold another virtual meeting with your team of medical professionals? What services do you think the medical professionals could conduct virtually?

    Amanda replied 4 years, 1 month ago 1 Member · 0 Replies
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