Research Visit in April
So I have scheduled my next visit to the University of Miami for the pre-fALS study. It’s always a little overwhelming for me. I spend two days at the hospital. One day having medical test and a second day completing surveys, motor skills tests, and cognitive testing. These are the medical tests
- Electrodiagnostic tests including electomyography (EMG) and nerve conduction velocity (NCV), evaluating areas that are involved such as the bulbar region, (the head, neck and brain for speech and swallowing), as well as the cervical region (arms, diaphragm), thoracic region (muscles of breathing) and the lumbar region (legs)
- Blood and urine studies, including high-resolution serum protein electrophoresis, thyroid and parathyroid hormone levels and 24-hour urine collection for heavy metals, in order to rule out any immunological or inflammatory disease.
- magnetic resonance imaging (MRI)
- Spinal tap -I’ve opted out but What do you think?
What questions should I ask Dr. Benatar this time? Any suggestions or advice?
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