Telling Young Children a Parent or Grandparent has ALS

[Dagmar]

Hello Marianne – – I found 3 books on the ALS Association website that are appropriate for children through teenage years that help them understand when a family member has ALS. The PDF version of the book is free and can be downloaded directly from the website:

https://www.als.org/navigating-als/resources/Youth-Education

And here are a few more options:
http://webdc.alsa.org/site/PageServer?pagename=DC_8_PALS_Resources_Children

http://webcsoh.alsa.org/site/PageServer?pagename=CSOH_8_Books_for_Kids_and_Teens

Hope these are of help 🙂

[Dagmar]

I just ran across this great website: MND Buddies https://www.mndbuddies.org/ which is from the UK and is focused on helping children understand living with a family member who has ALS (called MND in the UK).

Also here: https://www.mndassociation.org/support-and-information/children-and-young-people/children-aged-four-to-ten/

Online games, coloring books, books, and stories. Very impressive!

[Marianne Opilla]

These are really great. Thankyou Dagmar for researching this for me.

Marianne