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Tips for adjusting to living with a PEG (feeding tube)
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I just got a feeding tube a few days ago and wanted to compare my experience at the hospital to other ALS patients to see if it was similar or different. Thanks!
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Hi everyone,
I’m scheduled to get my PEG tube surgery on 7/14 through Interventional Radiology with a one night hospital stay. Wondering what recovery looks like and how long?
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I got my PEG this week- even though I can still eat by mouth and my breathing is in the low 90’s, and weight has been steady. MY neurologist encouraged me to get it done now while I am relatively healthy. My disappointment (aside from belly cramps which I hope will subside) is the amount of “hardware” that protrudes from the bumper- do I really need all this stuff right now since I am not using the PEG? Can I disconnect any of it?
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