• Posted by Amanda on January 4, 2022 at 9:01 am

    Welcome to 2022!! Our online community continues to grow. We’ve had many members participating since we launched several years ago, and each month we continue to grow. Are members are kind, thoughtful, supportive, inspiring and optimistic! And, they are filled with knowledge and tips that can be shared to help others.

    What kind of information and discussions would you like to see more of?

    What kind of events or online activities would you like to participate in for Rare Disease Day or ALS Awareness Month?

    Do you have any ideas that you would like to share about our forums? Just reach out to myself or Dagmar (or both of us) and we will see what we can do.

    Cheers to all of you and to 2022!!


    Dagmar replied 2 years, 6 months ago 2 Members · 1 Reply
  • 1 Reply
  • Dagmar

    January 8, 2022 at 12:08 pm

    May is ALS Awareness Month in the US. In Canada, it is held in June. Also, RARE Disease Day will be on February, 28th.

    Amanda and I would love to hear your ideas and suggestions of how we can highlight these awareness days/months here on our forum. Have you heard of any good activities other groups are doing?

Log in to reply.