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Covid was a downer for family get togethers. Was sad not to have what we usually do. Everyone stayed safe though. I will continue to try to find trials but so far I just don’t qualify anymore. I don’t see 2021 so different for me . Just like all other pALS I will continue to see my neurologist at USF as well as go to local clinic. I will do what I can but don’t intend to go crazy with expensive supplements or non approved meds.
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The holidays were ok. I was thinking about all of the families who lost loved ones to the coronavirus. 2020 was a heartbreaking year for a lot of people. Like Bill said, it was strange to not be together with family for the holidays, as well as throughout the year. I will just be trying to stay positive in 2021, although this has been extremely difficult for me so far. I won’t be able to do as much as before because of having ALS and this will be very upsetting. I probably will not be doing clinical trials. I hope this year is a better one for all of us.
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