ALS News Today Forums Forums Living With ALS What treatments or therapies do you use to manage ALS?

  • What treatments or therapies do you use to manage ALS?

    Posted by Amanda on April 25, 2025 at 11:36 am

    There are several drugs that most pALS are prescribed.  In addition to drugs, many of us go to physical therapy, get massages,  speak with a counselor, or eat a high protein/low carb diet. 

    What treatments, medication, or therapies do you do and how does it help living with ALS? Did your doctor make any suggestions outside of the typical ones?  Do you think that helps you and how?

    Dagmar replied 2 weeks, 6 days ago 2 Members · 1 Reply
  • 1 Reply
  • Dagmar

    Member
    April 29, 2025 at 12:13 pm

    My only medication is Riluzole (15 yrs.), I do daily “physical therapy” at home on my own – – doing my own stretching/strengthening routines several times a day. I tried massage during my 1st and 2nd year of ALS, but found I had too much trouble getting on and off the table, so I quit going. I don’t take vitamins or supplements – just try to eat a balanced, nutritious diet.

    I am curious Amanda, why mention high protein, low carb diet? Is it the latest fad diet for pALS? I last read that carbohydrates are good for helping slow progression.

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