When Should They Keep Their Mouth Closed?
When I first started taking care of my father when he had ALS, I referred to myself as his caretaker. I really didn’t see the problem with that term, until much later when a colleague gently educated me about the terms caregiver and caretaker. Thank you, Dagmar.
I was a little embarrassed about my oversight and really thought it should have been common knowledge, but it is always better to learn and change than to continue using words or terms incorrectly. I would hate to offend anyone in our community.
Are there things that friends or family say to you that sound insensitive or inappropriate about ALS or your journey? Are there things that you don’t think others should say to pALS or caregivers of a pALS? Are there words that should not be used? Are there questions that should never be asked?
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