I too, rely on ALS News Today for daily articles. But to keep “an ear to the ground” for trends or emerging topics, I also scan a number of ALS-focused Facebook groups.
I receive email updates from ALS Association and NEALS Consortium. And try to avoid signing up for alerts from groups who bombard me with donation requests. Sadly, IAMALS is one of those.
Interestingly, I don’t find many pALS on Twitter (only organizations) and Instagram is not useful either for “gathering information” – – people may be posting their latest thoughts or vacation photos…but very little news, or it’s recycled news.
I also check other disease news sites and blogs – – MS, SMA, Parkinson’s, etc. – – much of what happens in these arenas applies to ALS.