Entrepreneur Kevin Gosnell announced the launch of ALS ONE – a partner organization of the ALS Association and ALS Finding a Cure that aims to bring world-leading experts in neurology and amyotrophic lateral sclerosis (ALS) care together to realize an ambitious goal: finding a new ALS treatment within four years.
https://www.youtube.com/watch?v=zFHH6Ao2WFw Diagnosed with ALS, Gloria Taylor (1948-2012) spent what would be the last year of her life fighting a very public battle for the right to die with dignity. Gloria was at the centre of a successful British Columbia Supreme Court challenge that briefly overturned the ban on assisted suicide;…
Last week’s hot topic on ALS was the Potential ALS Treatments that May Be Identified by New Discoveries About Certain Proteins written by Margarida Azevedo. The article refers to the University of Kyoto and its researchers who discovered a protein associated with a gene involved in cancer suppression, the VHL protein,…
Researchers at the Institute for EthnoMedicine and the University of Miami Brain Endowment Bank have discovered that chronic exposure to an environmental toxin has the potential to increase the risk for neurodegenerative illnesses such as ALS and Alzheimer’s disease. The research paper, “Dietary exposure to an environmental toxin triggers neurofibrillary tangles and…
Learn more about stem cell treatment for ALS in this video by the Mayo Clinic. “Researchers at the Center for Regenerative Medicine are studying the use of intraspinal deliver of mesenchymal stem cells (MSCs) to the cerebral spinal fluid of patients with ALS using a dose-escalation study.”…
The solvable tragedy of Lou Gehrig’s disease: all 35,000 current ALS sufferers in the U.S. and 600,000 worldwide will soon die of their disease while existing therapeutics that might possibly help them remain out of reach unless we solve the barriers to access. Learn how one organization is restoring patients’…
https://www.youtube.com/watch?v=FOlG2u68S7s In this Washington Post video, watch Kevin Turner, 45, who “played eight seasons at fullback with the New England Patriots and the Philadelphia Eagles. After being diagnosed with ALS in 2010, Turner has brought awareness to concussion-related issues in football as he continues to fight an incurable disease.”…
In this 2014 video, Mashable takes you back to the first edition of the Ice Bucket Challenge and how it took social media by storm. Mashable Explains takes a look at what ALS is and how it affects the body. Learn more about ALS:Â https://bit.ly/ALSNewsToday…
University of Kyoto researchers discovered that a protein associated with a gene involved in cancer suppression, the VHL protein, and a protein that rescues cells from hypoxia (low oxygen) conditions, cullin2, are both involved in ALS progression. This discovery can lead to the identification of therapeutic targets for ALS treatment. The…
Amylyx Pharmaceuticals, a company developing a innovative therapeutic for amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease), recently announced that former Biogen CEO Walter Gilbert, Ph.D and Nobel Laureate, will join Amylyx’s board of directors. “Dr. Gilbert brings an enormous breadth of experience as a scientist, biotech founder,…
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