The Duke University ALS Clinic and the Freelon Foundation have announced a partnership to expand the school’s research on amyotrophic lateral sclerosis (ALS). The partnership will involve establishing an endowed professorship, providing funding for clinical trials, and increasing the number of patients the clinic can treat. Phil Freelon, who founded the Freelon Foundation…
Duke University Clinic, Foundation Team on ALS Research, Support
Genervon Biopharmaceuticals has published a list of 89 genes associated with amyotrophic lateral sclerosis (ALS) that are modulated by its drug candidate GM6. The identification of the genes regulated by GM6 helps to explain the mechanism of action of this treatment, which aims to improve neuronal repair and survival, and…
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7 Interesting Facts About ALS
Amyotrophic lateral sclerosis (ALS) is sometimes known as Lou Gehrig disease after the baseball player who famously suffered from the disease. We’ve listed seven facts about ALS you should know about with help from prevention.com and the ALS Therapy Development Institute. The first symptoms of ALS usually appear…
A new program at the University of Pennsylvania will pursue ways to use gene therapy and genome editing to treat amyotrophic lateral sclerosis (ALS). The Program of Excellence for Motor Neuron Disease, launched by researchers at the Orphan Disease Center (ODC) in the university’s Perelman School of Medicine, will receive…
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ALS Stories: Christi Wyatt Zimmerman
In this video from Tyler Morning Telegraph shared in September 2015, we meet the amazing Christi Wyatt Zimmerman. Soccer coach mom talks about her life with ALS. Christi from Texas was diagnosed with amyotrophic lateral sclerosis (ALS) in 2014 at just 36 years old. However, despite the…
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Belgium ALS Liga Take on the Mannequin Challenge
Have you taken part in the latest trend to go viral on the internet? Following the success of the Plank and ALS’s own Ice Bucket Challenge, the latest craze is to gather your friends for the Mannequin Challenge. The Mannequin Challenge requires of a group of people to stand completely still in…
Measures of respiratory muscle strength among patients with amyotrophic lateral sclerosis (ALS) can predict survival, both with and without the need for mechanical ventilation. Studies in which solid objective measures of disease prognosis are still scarce. But, serving as markers of prognosis, these measurements may aid in the development of…
The U.S. Food and Drug Administration will allow MonoSol Rx to use a new form of its Riluzole therapy, Riluzole Oral Soluble Film (Riluzole OSF), to treat amyotrophic lateral sclerosis (ALS) before the agency approves the new therapy. The FDA granted MonoSol Rx’s request that Riluzole OSF receive Investigational New Drug status, which…
AB Science SA‘s anti-inflammation treatment masitinib protects muscles and nerves against damage from amyotrophic lateral sclerosis (ALS), researchers have concluded. Professor Luis Barbeito of the Institut Pasteur in Montevideo, Uruguay, presented the findings at the 27th International Symposium on ALS/MND (Motor Neuron Disease) in Dublin, Ireland, in December of 2016. Masitinib…
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Soccer Coach Mom Talks About Living With ALS
https://vimeo.com/124557753 In this heartfelt video from the ALS Association Texas chapter shared in 2015, we meet Christi. The young mother from Tyler, Texas is still coming to terms with her recent amyotrophic lateral sclerosis (ALS) diagnosis and wonders if she would have lived her life differently had she known…
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