Soccer Coach Mom Talks About Living With ALS

https://vimeo.com/124557753 In this heartfelt video from the ALS Association Texas chapter shared in 2015, we meet Christi. The young mother from Tyler, Texas is still coming to terms with her recent amyotrophic lateral sclerosis (ALS) diagnosis and wonders if she would have lived her life differently had she known…

Being diagnosed with amyotrophic lateral sclerosis (ALS) is a difficult and stressful time. You’ll probably feel incredibly overwhelmed in the first few days and weeks, and struggle to understand the ramifications involved. To help with the process, we’ve compiled a list of tips for patients who have recently been diagnosed with…

A protein called Nrf2 could clear away harmful miss-folded proteins causing Parkinson’s and other neurodegenerative diseases by activating “house keeping” mechanisms in the cells according to a study published in the Proceedings of the National Academy of Sciences.

By inserting gene coding for light-sensitive proteins into other cells, researchers have developed a tool for studying the way liquid-like protein structures assemble inside cells. The tool will not only increase understanding of how cells work while healthy, but also contribute to research on diseases such as amyotrophic lateral sclerosis…

Nanci Ryder is a Hollywood publicist with A-list celebrity clients. When she was diagnosed with amyotrophic lateral sclerosis (ALS) two years ago, her clients decided that they would help publicize Nanci for a change, helping to raise funds and awareness of the disease. Former NFL star Steve Gleason…

ALS can be a difficult disease to diagnose as many of the early signs and symptoms can mimic those of other conditions. In this video shared by Mike Brez, we meet Clara. Clara has recently been diagnosed with amyotrophic lateral sclerosis (ALS) after first being misdiagnosed with carpal tunnel…

The pharmaceutical companies Evotec and Celgene will collaborate on a drug discovery and development program to identify and develop novel disease-modifying therapies for several neurodegenerative diseases, including amyotrophic lateral sclerosis (ALS). The partnership will allow the screening of drug compounds developed by Celgene using Evotec’s platform of induced pluripotent…

This emotional video from Marissa Coriell is an incredibly moving tribute to her husband, Alexander. Alexander was diagnosed with amyotrophic lateral sclerosis (ALS) in January 2013. The video shows how quickly his condition progressed. By September 2013, Alex was unable to swallow food and needed a feeding tube,…

Increased excitatory toxic signaling in neurons in the part of the brain controlling movement triggers the breakdown of cells long before any symptoms of amyotrophic lateral sclerosis (ALS) are noticed — at least in mice with ALS. The study, “Cortical synaptic and dendritic spine abnormalities in a presymptomatic TDP-43…

Patients with amyotrophic lateral sclerosis (ALS) have a different functional brain network than healthy individuals, and that difference appears to be strongly associated with disability, according to new research. This finding supports previous research suggesting that monitoring a patient’s brain for changes in its neuronal network can aid in evaluating ALS disability and likely disease progression. The study,…