Being diagnosed with amyotrophic lateral sclerosis (ALS) is a difficult and stressful time. You’ll probably feel incredibly overwhelmed in the first few days and weeks, and struggle to understand the ramifications involved. To help with the process, we’ve compiled a list of tips for patients who have recently been diagnosed with…
10 Tips for Patients Recently Diagnosed With ALS
Researchers have developed a new approach that might help ALS patients maintain their ability to communicate as disease progresses, according to a study published in the Journal of Neural Engineering. In the research paper, “Self-Regulation Of Brain Rhythms In The Precuneus: A Novel BCI Paradigm For Patients…
Long-term use of Rilutek (riluzole) is associated with a better outcome in sporadic amyotrophic lateral sclerosis (ALS) patients, whereas short-term use seems to have little effect on survival according to a study published in the scientific journal Frontiers in Aging Neuroscience.
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7 Benefits of Vitamin D You Might Want to Know
Vitamin D is often called the “sunshine vitamin” mostly because we can get it naturally when the sun’s UV rays interact with our skin, which triggers the vitamin’s synthesis. The VIP vitamin aids our body’s absorption of calcium to keep our bones strong and encourage healthy cells to grow. Here are a few more health benefits of…
The ALS Association is awarding a $2 million grant to the ALS ONE-Massachusetts Partnership that will partially sponsor a University of Massachusetts Medical School project led by Robert H. Brown, Jr., MD, PhD, a world-renowned specialist in amyotrophic lateral sclerosis (ALS). The grant will help Brown and colleagues develop two gene…
The European Medicines Agency’s (EMA) Committee for Orphan Medicinal Products (COMP) has issued a positive opinion recommending that ibudilast (MN-166) receives orphan medicinal product (orphan drug designation) for the treatment of amyotrophic lateral sclerosis (ALS). MediciNova is currently focusing on the development of ibudilast for neurological disorders…
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Prison Chaplain Shares His ALS Story
https://vimeo.com/124556645 In this video from the ALS Association Texas chapter shared in 2015, we meet Steve. A recently retired chaplain for the federal prison system from Fort Worth, Texas, Steve is about to get married to his longtime sweetheart, Anna. Meet pastor Kevin Kinchen, who hasn’t let his ALS…
A woman with amyotrophic lateral sclerosis (ALS), who had lost nearly all capacity to communicate, is now able to successfully interact with her surroundings using a brain-computer interface implant, according to a recent article in New Scientist magazine. The device is thought to be the first used in a patient’s daily life, without the need…
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Iron-Based Proteins In the Brain May Be Biomarker for ALS Diagnosis and Progression, Study Concludes
Researchers in China recently evaluated the changes of ferritin levels in the brain’s cerebrospinal fluid of patients with amyotrophic lateral sclerosis (ALS). They found that ALS patients exhibited significantly increased levels of ferritin, an iron-based protein, a result that indicates ferritin has value as a biomarker and could be used for…
Researchers at Nagoya University in Japan, in collaboration with several U.S. institutions, suggest that the collapse of the mitochondria‐associated membranes (MAM) is linked to the development of amyotrophic lateral sclerosis (ALS). Mitochondria‐associated membranes regulate calcium levels, mitochondrial function, and cell death in the body, and have been linked to neurodegenerative…
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