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How do you describe ALS to friends and family?
For anyone outside of the ALS community understanding exactly what ALS is can be very confusing. In fact, it’s confusing enough for those of us who have it too! I’ve had to answer questions such as: what is ALS? Is it the same as MS? Or, how did you get it?
I know that friends, family, and even strangers who ask me these questions aren’t ready for a long and detailed technical explanation. So, I use short, easy versions. Mine are: “I have a muscle-neuron condition,” or “the motor-neurons in my legs are slow.”
What do you tell people who ask about your ALS? Do you have a short description that explains the concept in a way such that any listener can understand it in a short period of time? I’m sure our newly diagnosed forum members would appreciate learning from you.
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