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  • Amanda

    Member
    January 29, 2021 at 8:31 am

    We will be doing a few more IG live “shows” so I’ll keep everyone posted.  Are there any topics that you think you we should discuss?  Have you watched any of the IG live interviews?

  • kathy-stitz

    Member
    January 29, 2021 at 9:33 am

    Finding a cure for ALS as soon as possible!

  • Dagmar

    Member
    January 29, 2021 at 10:59 am

    I watched your IG Live and you did a great job, Amanda! (sorry I signed on a little late… I’m not an IG-regular, and had to figure out where the “live” button even was!)haha

    To that point, I’ve observed that not too many pALS use Instagram. But there are a lot of ALS organizations & fundraisers who do. Most pALS seem to be on Facebook and in forums. (am I right about this, or not?)

    So, perhaps the best topics should be targeting these organizations such as: ALS News Today as a trusted news source, and maybe the popular topics being discussed among pALS & cALS that the organizations should be aware of.

    Again, you did a great job Amanda 🙂 I’m looking forward to your future interviews.

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