ALS trial for gene therapy
My cousin (male) was diagnosed with ALS last year. He seems to be progressing slowly, but he has shared that he often has difficulty getting out of chairs, standing up, and other routine activities. When he goes grocery shopping he is exhausted for the next two days. He’s a trooper and he is trying to stay positive. I think that is a challenge since he is single and has always been very independent. He is understandable concerned about what his life will look like as his ALS progresses.
In October he is participating in a clinical trial. The trial involves gene therapy, or trying to address the SOD1 genetic mutation that leads to ALS. We are hoping and praying he does not get the placebo.
Is anyone else involved in this study or anything similar? If so, please share some information.
As I learn more about the trial I’ll share. It’s exciting to know there is some progress.
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