Viewing 3 reply threads
  • Author
    • #21344
      Dagmar Munn

      Recently, I wrote this column describing my many duties as co-moderator of this forum. Amanda and I agreed that it gives a good picture of what we both do on a daily and weekly basis. This is written with a humorous eye – – and we hope you enjoy this “behind the scenes” peek at our co-moderator roles 🙂
      “Most folks know me through my column, “Living Well With ALS,” and perhaps don’t know that for the past three years, I’ve also been a co-moderator of the ALS News Today Forums. I thoroughly enjoy this responsibility, and to bring a bit of levity to this online job, I often imagine the various hats I’m wearing for each task.

      I share moderating duties with Amanda, a school psychologist in Florida. I have sporadic ALS, and she lives with a hereditary predisposition to ALS in the form of a genetic mutation, so between us, we share our personal knowledge of the disease.

      As good forum hosts, we welcome new members, add to ongoing conversations, and help our members navigate any philosophical differences. This brings me to my hats.” You can read the full column here:

    • #21347

      Oh Dagmar, this article is perfect! It is clear all to often that many of our members do not know what are responsibilities are or what we do each day! What started off as a part-time job, an hour or less a day each week, has turned into something that I live for each day! I spend much more time logging on, emailing, researching and reaching out to others on behalf of our online community than I ever thought I would, and I feel every second spent is worth it!! Of course we are not experts, and we are trying our best to provide support, and a safe place for all pALS and caregivers to vent and ask questions. Thank you so much for the article and for posting it the information in the forums.

      This doesn’t even begin to touch the “extra” that we do because we care so much about our community. We volunteer our time for all the activities and events such as ALS Awareness Month, RARE Disease Day, and any other “days” that might help advocate for ALS or pALS. In addition, there are things we do behind the scene “just because” we feel it will support a cause that we believe so deeply in, advocating for ALS and pALS.

      The most precious, and vital part of what I get to do for ALS News Today is build relationships. Many of the members have become friends on the forums and outside. Some on social media, some we speak on the phone from time to time and some through email. Often times it starts off with a question or a simple comment. Then somehow a wonderful friendship develops. I learn so much from my expanded circle. I get so much more from my friendships than I could possibly receive.

      Dagmar, once again, THANK YOU! You continue to inspire me personally and professionally.


      • This reply was modified 1 year ago by Amanda.
    • #21352
      Karl Schachtner

      Well my hat’s off to both you and Amanda for the job you do! I always enjoy perusing the posts and replies here in this forum, and the excellent moderation you both provide is a big part of it.
      Thank you!

      • #21368

        Thank you!! It’s very nice to get to know our community members. I learn from something new every day!

    • #21353
      Kathy stitz

      Amanda and Dagmar, thank you for all that you do to help and support pALS and their caregivers!

      • #21369

        Hi Kathy!! And thank you!!

Viewing 3 reply threads
  • You must be logged in to reply to this topic.

©2023 KLEO Template a premium and multipurpose theme from Seventh Queen


We're not around right now. But you can send us an email and we'll get back to you, asap.


Log in with your credentials


Forgot your details?

Create Account