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    • #19418
      Kathy stitz
      Participant

      My birthday is still a few months away but I was thinking how, when you have ALS, it’s difficult because you don’t know how many more birthdays you will have.  Has anyone else felt like this and, if so, how did you deal with it in a positive way? Thank you in advance!

    • #19420
      Dagmar Munn
      Keymaster

      Kathy, it’s easy to fall into that type of thinking. Dwelling on “how many birthdays do I have left?” is the same to me as asking “how long will I live?” No one knows how long they will live (with or without ALS) I have ALS, but that may not be the cause of my demise… tomorrow I could be hit by the beer truck (an old saying)…

      Rather than worrying about how many days or years I have left, I focus on TODAY. Heck, I’m so busy and my to-do list is so full, I have to live a lot longer just to get everything done 😉

      This may be of help, click this link:
      Are You Stuck in the ALS Waiting Room?

      Are You Stuck in the ALS Waiting Room?

    • #19421
      Kathy stitz
      Participant

      Just realized I posted this in the wrong forum.  Sorry about that!  Dagmar, thank you for your response.  I will try to just focus on today!

    • #19423
      Dagmar Munn
      Keymaster

      Which forum did you want to post it in? I can change it for you.

    • #19425
      Kathy stitz
      Participant

      I wanted to post it in Living With ALS.  Thank you!

    • #19448
      Ken Erickson
      Participant

      My birthday was May 23, 2021. I turned 55 years old and I was diagnosed with ALS in 2017. Looking forward to a long life with ALS.

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