• tom-hehir

    Member
    June 24, 2021 at 5:03 pm

    Hi Marianne,

    I think every PALS should be offered a bipap and cough assist at diagnosis. It just makes sense that we should try to preserve our breathing muscles as much as possible. Thanks for your response. I think attitude does matter.

    Tom

  • kathy-stitz

    Member
    June 25, 2021 at 5:49 pm

    Hi John,

    Thank you so much for your post.  It has been a year now since my ALS diagnosis and it has been a very difficult year for me.  I experienced other health issues in the past but this one has been so devastating and debilitating.   Since there is no cure for ALS and not much that the doctors can do for pALS, I have often felt depressed and hopeless.  I wish I had a magic wand I could wave and make all of us better.  It is important for pALS to take care of themselves mentally and physically but this is a lot easier said than done.   Finding joy and meaning in our lives and trying to maintain hope is essential.   Thank you again.

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