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      Amanda
      Keymaster

      We all know that the road to a correct diagnoses is often long and challenging, for some more than others!  And now there is a Coalition to help ensure that challenges faced by minorities seeking diagnoses and treatment are considered. https://alsnewstoday.com/2020/06/10/black-womens-health-imperative-creates-rare-disease-diversity-coalition-to-tackle-racial-disparities/

       

      The NIH repprts. ”

      In 2016 the Centers for Disease Control and Prevention estimated that between 14,000 – 15,000 Americans have ALS.  ALS is a common neuromuscular disease worldwide. It affects people of all races and ethnic backgrounds.

      There are several potential risk factors for ALS including:

      • Age. Although the disease can strike at any age, symptoms most commonly develop between the ages of 55 and 75.
      • Gender. Men are slightly more likely than women to develop ALS. However, as we age the difference between men and women disappears.
      • Race and ethnicity. Most likely to develop the disease are Caucasians and non-Hispanics.

      Some studies suggest that military veterans are about 1.5 to 2 times more likely to develop ALS. Although the reason for this is unclear, possible risk factors for veterans include exposure to lead, pesticides, and other environmental toxins. ALS is recognized as a service-connected disease by the U.S. Department of Veterans Affairs.”

      What suggestions do you have for people who are struggling to get access to health care?

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