When you or your loved one were diagnosed with ALS, did your doctor request that you participate in genetic testing? If so, did you participate in genetic counseling before and after hearing your results? Genetic testing is often a major part of medical research for ALS. Although familial ALS only accounts for 10 percent of ALS cases, there are still many unknowns. By providing genetic testing for research studies you may help researchers discover another mutation or a series of mutations associated with ALS. These types of discoveries may lead to a treatment or cure. If you would like to learn more about genetic testing check out the information provided by the ALS Association http://www.alsa.org/als-care/resources/publications-videos/factsheets/genetic-testing-for-als.html or ask your doctor.
What are your thoughts on genetic testing and participating in research?
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